RESUMO
INTRODUCTION: Healthy behaviour through education of individuals with arthritis is the mainstay of long term management. Time and access constraints restrict medical professionals from active involvement in arthritis education in the community. Reaching the community through the Accredited Social Health Activists (ASHAs) is the plan of action operational in India. Hence, the factors encountered by ASHAs while delivering arthritis education programs need to be studied. AIM: The aim of the study was to explore the experiences of ASHAs while delivering arthritis education program. MATERIALS AND METHODS: Qualitative exploratory design employing semi-structured interviews was adapted for the study. The interviews were conducted using focus groups of ASHAs from two geographically similar villages. Inductive analysis of focus group discussions was undertaken to determine themes, categories and codes. RESULTS: Three broad themes were identified from the interviews which influenced the performance of ASHAs. Categories identified show the influence of training, characteristics of ASHAs, geographical features, family characteristics and community attitude. Few problems reported were means of transport, time constraints, multiple tasks, type of incentive and frequency of on-field demonstrations. CONCLUSION: Providing motivation for altruistic services has always been a challenge to governing bodies. The issues identified in this study can be addressed prior to integrating ASHAs for rehabilitation services.
RESUMO
INTRODUCTION: Facilitation of child development is usually emphasized in the form of early intervention classes and practical demonstrations. However, non-adherence to home program for such interventions has been reported due to various reasons. AIM: To develop and validate an educational leaflet as a supplement guide for caregivers to promote better development of their child during 4-6 months of age. MATERIALS AND METHODS: An in-depth literature review and focus group discussion with the experts was conducted to formulate the content of leaflet. Initial framework consisted of introduction, main text with pictorial representation and instructions about facilitation of various milestones, do's-don'ts and disclaimer. Validation was done through a questionnaire consisting of 9 questions pertaining to completeness, understandability, legibility, clarity and utility of educational material for caregivers and a section for comments. Leaflet with enclosed questionnaire was distributed to 14 validators (2 neonatologists, 4 paediatricians and 8 physiotherapists), along with a covering letter stating the purpose and relevance of this educational material, and the importance of their participation in validation process. Scoring was done on 5 point Likert scale for each item in the material. RESULTS: Responses from the 14 evaluators were collected and analysed. Item level content validity index (I-CVI) was calculated for individual items which ranged from 0.73 - 1. Scale level Content Validity Index (S-CVI) was calculated for complete nine items and it was found to be 0.91. Validators expressed their views to include a column on normal milestones across 4-6 months of age and also to highlight the significance of performing each activity mentioned in the leaflet. These suggestions were incorporated in consensus with the subject experts and the final draft was made. CONCLUSION: Educational leaflet for caregivers of 4-6 months preterm infants has been developed and validated. It can be provided as a supplement guide to the caregivers to facilitate better development of their child.
